The Effects of Cystic Fibrosis on on the Self-Concept of Adolescents

Abstract

Cystic fibrosis (CF) is one of the most prevalent and chronic childhood diseases, having a significant impact on the lives of those affected with the disease as well as their family members. CF is “a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time” (Cystic Fibrosis Foundation, n.d.). More than 70,000 people worldwide are affected by CF and have an average age of survival into the mid- 30s (Clifton & Sullivan, 2017). Although CF is a physically taxing disease, the psychosocial challenges can be just as difficult for someone living with the disease. With changes in physical appearance and limitations of normal activities, an individual with CF is at risk for disturbed self- concept. Self-concept is defined as the mental image or picture of self (Taylor, Lillis & Lynn, 2015). The definition of self-concept consists of four components including personal identity, body image, self-esteem and role performance; this Evidence-Based Practice Brief will primarily focus on body image and self-esteem (Taylor, Lillis & Lynn, 2015). To provide care in a holistic manner, nurses working with patients who have CF must take into account not only their body but their mind and spirit as well. The purpose of this Evidence-Based Practice Brief is to bring awareness to the impact CF has on self-concept and how it should be incorporated into planning holistic care.